Monday, April 29, 2024

Diagnosis day aka the day we busted

When April 29 comes around, the countdown of days begins in my head. April 29, 2014 was the day that Mom and I were headed to Disneyland to meet up with my brother, sister-in-law and niece for a few days of fun. The plan was for her to pick me up from work and we would hit the road. Around noon, I received a text - "Dr called your Dad in to talk about his test results. Not sure if I should go with him or not." We went back and forth a little before the decision was made, "Your Dad said I should just go ahead with our plans. I'll be there to pick you up." Looking back, I wish I had pushed her to make a different decision.

Mom came and picked me up. As we made our way out of town I posted on Facebook, "Disneyland or bust!" I remember the exact point of the road when the phone rang, where we answered the call and my Dad's voice came through the car speakers, "You better come home. I...", he said something that got lost in the cell reception, road noise and maybe the fuzziness of our brains that comes when really bad news is about to be delivered that you really don't want to hear. We looked at each other, neither one of us fully comprehending what was said, and I asked, "What did you say?" My Dad replied, loud and clear, with a irritation in his voice at having to say it again, "I have Leukemia." I'm not sure there was even a second that passed before my Mom was changing lanes to make a U-turn. We busted.

I don't recall what Mom and I talked about in the hour or so it took to get home. I'm not sure we talked much. I remember getting home and sitting on the couch across from my Dad as he recounted the diagnosis, Acute Myeloid Leukemia. He could live 6 months to a year without treatment, or he could try chemotherapy. We talked about those options. We talked about the what-if's. We sat and looked at each other, each of us lost in our own sense of disbelief that this was actually happening. At one point, my Dad looked at me and uttered the words that have become an inside joke between my Mom and me, "If I die, you get my car." I didn't want his car. I had a car. I didn't NEED his car, I needed him. I now own his car.

We decided that I was to continue the journey that my Mom and I had started earlier that day, and head to Disneyland, more specifically, to go be with my Brother. I picked up the phone and made the call, sharing news that would forever alter the trajectory of our family. 34 days later, he was the one telling me news that forever altered our family. 

That weekend was when Disneyland became my refuge, a place to escape, to be happy, even though I was really, really sad. I had a few hours alone one day, my first solo experience in Disneyland, and just walked through the parks, watching families enjoy the magic that is Disneyland. I welcomed the laughter and the joy. I left the reality of what was happening at the gates, and immersed myself in the Happiest Place on Earth. People ask me, all the time, why I go to Disneyland so much. It's my refuge.

My Dad chose chemotherapy. He took a gamble and got 34 days. He went out on his terms. April 29 - Diagnosis day, aka the day we busted. It comes around every year and the countdown starts in my head.